This page is very sadly a tribute to my beautiful, brave, inspirational mum, who passed away and is at peace finally this evening
MND is such a small part of my mum’s story, she will always be so much more than someone who has been diagnosed with MND....
My mum’s diagnosis has been a long time coming.... we have hit many many obstacles & have had a lot of unhelpful advice & care along the way.
One of the main reasons I wanted to set up this page for mum is because I would hate anyone else to have to go through what we have....... MND is still rare & many health professionals are not aware of the signs & symptoms of it. We need to raise awareness & more importantly we need to give people HOPE after diagnosis as of now there is no treatment, there is no cure, we can only watch as our loved one disappears before our eyes.
My mum used to love playing the piano, singing, cleaning!, & talking........ A LOT!!! These things she can no longer do, they have been taken from her & won’t be given back.... just a simple request for me to hear her voice one more time, but I can’t hear her, it had gone....
This story reads stark & bleak, but this is the story of MND, & what my mum lived with... please help me to raise money to help find a cure for this cruel, rapid, horrific disease.
I also want to say that the MND association have been amazing & have been a tremendous support to my mum & our family, please contact them for advice, support & information ❤️❤️❤️❤️
I will be holding a fundraising event in the near future filled with music, laughter & a night of joy!
There are no events scheduled at the moment.
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